Whew...the holidays are almost over

I've been so hectic this past month. Hopefully after New Years', I'll have some more down time to blog. I'm still working on Sarah's website and want to include a link to this blog as part of it. Then I can post some pictures and video of her therapies. She's really been stimming the last couple days. I think all the excitement is just totally overloading her senses. We have a very quiet New Years' Eve planned...just the five of us, some Indian food, and a little sparkling cider. I have a ton of "to-dos" that I need to take care of next week. I'm giving myself a break this week from phone calls, homeschooling, and schedules.

Wow...today was just one of those days. I was in such a foul mood and for really no reason. I just wanted to be left alone. I just felt like I barely had the energy to even hold a conversation with anyone. Of course, that is not possible because Sarah had SI, nutrition counseling, and her EI social worker come over. So I had to put on a smile and be all chipper. What I really wanted to do was crawl back into bed and just sleep the day away. Hopefully I'll be back to my old self tomorrow. Every so often I just get in a mood like this and I can't shake it all day. Tomorrow I am also starting a new diet. I really need to take better care of myself.

We had speech therapy this morning and Sarah was really into the little instruments that Amy brought over. She was using these two little blocks that you rub together, then she would look at us like she was waiting for someone to clap. It was great! She really likes when you clap for her and say "Yay Sarah!!". She'll wait a few seconds and then try to clap by herself. She really tolerated the music play for quite a while. Once she started to hit herself in the head with the toys though, we called it a day. I can't wait to start OT because I'm very anxious to hear any tips she may have for me to help Sarah with her self injurous behaviors. That is one thing I am quite worried about. She's slowed down on the actual headbanging but has started to actually hit herself on the side of the head with her hand or a toy.

All About My Sarah and Cornelia de Lange Syndrome

So, I've decided to start a blog about my daughter Sarah and our day to day life. Sarah has Cornelia de Lange Syndrome. I have a website where you can read all about her and find some links to sites that offer information about this syndrome....www.sarahbeanscdls.com. We are still working on the site so hopefully there will be more information on there soon, along with pictures and eventually videos.

Sarah has alot of appointments each week with therapists and doctors. I thought I'd use this space to "let it all out". It does get very stressful sometimes. The fact that I homeschool my older two girls doesn't make things any easier. It's usually very busy around here all the time. Hopefully, I will be able to find some time in the evenings to keep this blog updated.